Blog update 21 April 2016
Well time for another update. Unfortunately
things are deteriorating. Dealing with fluid build up means breathing becomes
more difficult. Blood results haven’t been good for a while and heart likes to
let me know its still there in only the special way it can lol. Unfortunately the
transplant unit are playing games again and refusing to reply to email
questions of a medical nature. Not only is it unprofessional I have to wonder
whether it’s bordering on a criminal act. We are told from day one we can rely
on certain people and we certainly need to as years go by. Unfortunately they
are the first to point out your responsibilities but try to absolve themselves
of any responsibility through their actions. The behaviour is disgusting and
unprofessional and unfortunately leaves me with no option but to look at legal
and public (media) action as soon as I am able. It is so sad that it has come
to this but it is what it is.
The pain throughout my body is
constant now with only little relief from the opiates. I would like to be more
productive with my writing and I am doing my best but it is getting harder. I am
worried I will run out of time to do the things I want to do before the end. I
will not allow myself to end up in any sort of palliative care as the words “Queensland
Health” and “pain relief” do not go together in my vast experience with them.
Chapter 6 of my book seems to be
taking forever but it is now nearly there and will be posted shortly.
Take care all
I’ll keep battling
D xo
No comments:
Post a Comment