Blog update 19 February 2017
hi everyone yes its me. my apologies for not commenting but this past week has been more of a struggle than usual. as most of you that know me would know i don't do asking for help but kerri and samantha ended up doing an amazing thing putting this together and i will be forever grateful. its a shame that we live with a system that has failed so dismally down through the years that this sort of thing becomes a necessity. when mobility and breathing become something that is becoming impossible but can be fixed if you have the funds you know the system is broken. most importantly i want to thank those of you that have given to help. i will never forget your generosity and kindness and i will never stop thanking you. as my productivity gets less and less and my health deteriorates its so important to know there are people who care and actually back it up. there is no "beating" this. it is not like cancer where there are treatments and chemo etc. no with this you simply deteriorate and die. that is the reality so it comes down to trying to treat symptoms as they get worse and to be as comfortable as possible until the end. thank you and i will do my best to be in touch again shortly for those who want to know how my health is going. love D xoxoxo
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