Blog update 8 March 2017

Blog update 8 March 2017

To get started i'd just like to say RIP and my condolences to an old school friend and his family. Alex Mynett and his young family. these things are awful and as someone who knows first hand about life and death in my own body and my family nothing really prepares you. :(

Well i had my latest clinic with the thoracic (lung) specialist and as expected it was decided to double my dose of oxygen from 2 litres to 4 litres per minute 24 hours a day. Hopefully this will help me with a bit of comfort not only from a painkilling help with angina but the obvious breathing help.

For the moment he has decided not to start vampiring my blood because of the polycythemia. When my hemoglobin level exceeds 200 the heart doctor and himself will need to talk. 

Was interesting to see that the various specialists still had not communicated satisfactorily as he was not aware of a few crucial things when i arrived. Nothing unusual there we are talking about Queensland Health after all lol. 

So to put it bluntly the bad stuff is getting worse and the good stuff (well there might be some) is relatively stable. Cholesterol isn't too bad. :) Well i gotta find a positive somewhere right lol. 

Just another hugely important reminder as we come to the end of the gofundme campaign https://www.gofundme.com/restoring-darrens-dignity i want to thank those who have donated or shared the page on facebook or both i thank you with everything i have and will be in touch. for those that have not i also thank you as i have learnt a lot about life. xoxoxo D

Also thank you to those who have been working behind the scenes with Kerrie to mate it all happen it is HUGE! :) 

For those keeping score here is the list once again lol (hey you gotta laugh right? even when you are karking it :) )

Terminal Heart Transplant Vasculopathy (formally chronic rejection). untreatable

Lung disease requiring 24 hour oxygen therapy

Polycythemia (a form of blood cancer) 

Thyroid removed now treated with thyroxine and liothyronine 

Massive abdominal hernia causing constant pain cannot be operated on due to not wanting to have me under general anesthesia. 

General heart failure

Gout in ankles, big toes and hands

Tenosyavitis in wrists and hands

Rheumatic pain and arthritis pain all over especially heels and toes

Hypoxic brain injury after being dead and revived after 20 minutes down. 

Take care everyone xoxoxo

Darren