Update time: well with footy finals gone, most important
thing on bucket list happening and Bathurst
(congrats to David Reynolds) out of the way now is as good a time as any for an
update.
Straight up as always things are getting harder with nothing
easing angina pain but time now. Oxygen now required for any form of exercise
and by that I mean simply standing up. Now showering etc with oxygen. Good stuff
this oxygen lol. Have now asked a friend to contact some of you when the time
comes about wake details and he will along with another couple of dear friends
contact everyone through social media.
Bottom line is I have been dead 3 times and this is the
second time I have had to deal with terminal illness. The first time I was
lucky and received a transplant but this time there are no treatments or ops
that can stop it. The most important thing right now is to drag it out as long
as I can but once again that can only be controlled to a certain level by attempting
to ease symptoms. So all I can do is fight the pain take as many blood thinning
stuff that I can to hold off thickening blood from the polycythemia from
causing more heart attacks and try to hold off the inevitable as long as
possible. Unfortunately when you are on your second heart your options are far
more limited than when you have your original heart. Its also no fun living through
the whole death and terminal illness thing when you have already done it once before and know what’s
coming.
Today is dday for my immunosuppression medication with one
of my primaries being halved from today for the first time in many years. The real
scary bit is that the doctor that has ordered it has an awful record with my
meds. In fact I have been correct and he has been wrong on numerous occasions
about various important things since 2011 when I first encountered him. Let the
games begin.
Luv yaz awl lol
D xoxoxo
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