Tuesday, 27 October 2015

Chapter 5 (abridged) A Year Terminal

Chapter 5 (abridged)

A Year Terminal

2002/2003 was the year from hell, yet as with so many of the bad things that have been outlined in this book there were also moments of positivity that I can never forget.

One of the strange effects of being “dead” for twenty minutes was that the brain damage caused from lack of oxygen manifested itself in some strange ways that are still making themselves known to me to this current day. For the first three months my right arm and shoulder were paralysed and would simply hang at my side. However when something substantial was placed in my hand such as a ball my arm would come to “life” and work. At the time it was a mystery to both my physio who just plain called me weird and the clinical neuropsychologist who couldn’t figure it out.

I later found out that whilst the brain does not repair damaged tissue it does have the ability to find other “pathways” to get the message out to other parts of the body. In my case to simply move my arm. After 3 months I regained movement in my arm with out having to have something in my hand.

Unfortunately as I indicated earlier there were and are other effects from hypoxic brain injury. For the first few years my well known ability to pull statistics out of the air whether they are movie box offices, music chart performances or sporting results was virtually left untouched. As the years have passed my ability to access these things has grown slower and slower to the point where I started to notice it was affecting my performance as an on-air anchor and analyst on my beloved sports radio show.

I also found out pretty much immediately during my recovery that I had what was simply called a “tracking” problem. Put simply if I am in a conversation sometimes if I stray too far away from the point I was trying to make I will not be able to get back “on point” as I cannot remember where I was in the conversation. The bad thing about this is I will often realise this is occurring while I am talking and know that I cannot dig myself out of that situation. As you might imagine this is absolutely terrifying if I am on the air and in the middle of an interview. Luckily it has only happened a couple of times on-air and I managed to hide it well. More on that later.

I spent the first two months of my recovery in Townsville at my mother’s place waiting for the go ahead to drive again.

My employer in Brisbane for want of  a better phrase pretty much abandoned me. The boss didn't bother to keep in touch and my company car was taken from me as soon as i arrived back in Brisbane after i flew in. a person's quality of character is most at test when times are bad. unfortunately to this day i am yet to receive a call to see how i am going. 

I was able to get home to Brisbane just in time to see my beloved Springwood Football Club make the grand final in both grades. We won both premierships in 2002 and after having been manager of those teams for a number of years and held committee positions and the vice-presidency of the club it meant everything to see the boys have a great year.

That day was also a day I will never forget due to the actions of an exceptional young man by the name of Mitchell Cameron. The Springwood Football Club reserves had won the Grand Final. The final siren had just sounded and the boys were in ecstasy celebrating a great win. As they started to make their way over to our supporters, some of the players led by Mitchell came over towards where I was sitting. I had been sitting next to Mitchell’s mother Linda and my dear friend Stewart Manning’s wife Kelly.

Bear in mind at this stage I wasn’t doing so well. Despite the weather that day being fine and a little warm in the sun I was rugged up like it was a winter’s day. My skin was grey and cold due to lack of heart function and circulation. To say I looked like “death” that day was an understatement and the truth was I wasn’t well but I didn’t want to miss the boys playing in a grand final. There was a realistic probability it would be my last.  

Mitchell and the boys ran over and jumped the fence. Naturally I thought he was coming to celebrate with his mother but to my surprise he stopped in front of me and grabbed my face. He looked into my eyes and said “we did it for you yogi!” Yogi was a nickname given to me by Neville Shaw and Andy Colenso who were both ex Collingwood Football Club players who had become involved with Springwood a few years earlier. Never had the nickname meant more to me than at that moment as Mitchell hugged out the little breath I had in my lungs at the time. For the first time since Rosa the nurse at Townsville General Hospital said those perfect words to me while I was having my second major heart attack I completely broke down in tears.

I looked at his mother with tears streaming down my face and all I could say was “he’s a good boy Linda he’s a good boy”.

After the heart attacks I was in a period of medical limbo through the rest of 2002. For some inexplicable reason that baffled my GP and pretty much every medical professional that I spoke to at the time my file seemed to have been put on the backburner at Logan Hospital, a hospital with a rightfully at the time poor reputation  between Brisbane and the Gold Coast.

What could not be understood was why someone as young as me with two major heart attacks in my history and a heart function that was steadily heading down hill did not seem to have major red flags all over my files. I later found out that after a couple of months of procrastination that the doctors involved simply had no idea, got scared and finally wrote a letter to the Queensland Heart Failure Unit at The Prince Charles Hospital in Brisbane. Needless to say this should have been done from day one.

With my health fading I was finally asked to come into the Queensland Heart Failure and Transplant Unit. From the moment I arrived I new there was something very different about this place compared to other hospitals. After the genuine fear that I felt at having to deal with Logan Hospital and their procrastination over my case The Prince Charles Hospital in Brisbane was a revelation. There were minimal waits for outpatients’ appointments, staff were fully accessible to answer questions and a general feeling of safety and comfort existed that I had never experienced in a public hospital before. Unfortunately at the time of writing (May 2015) I no longer necessarily feel this way.

November 2002 was a very different time however and under the leadership of Dr Andrew Galbraith the Heart Failure and Transplant Unit always felt like a safe place to be even with the occasional hiccup when certain medical professionals would have an extreme attack of arrogance and ego.

From the moment I was admitted both Dr Andrew Galbraith and Dr Deborah Meyers could see I was in big trouble.

After a number of tests it was decided to have an angiogram. As it was a standard cardiac procedure involving the placement of a cardiac catheter into the right Femoral artery and I already had two stents placed in my blocked arteries from the initial heart attacks I wasn’t worried. It is a routine procedure after all done under local anaesthetic.   

I had the procedure a couple of days before Christmas and was told I could go home for Christmas but would need to come back on New Years Eve for more tests and procedures. At this stage I had had a Super Ventricular Tachycardia attack during a procedure and peaked at 263 beats per minute before the defibrillator zapped me back into rhythm. My pulmonary blood pressure was also high which meant we were looking at a probable heart and double lung transplant. An easier operation for the surgeon to perform than a straight heart transplant but also with a 20 percent higher mortality rate for the patient. Let’s face it a heart and both your lungs is a big chunk of your body to go pulling out and replacing. Thankfully my pulmonary pressures came down enough over the next few months for me to just scrape in for a heart transplant.   

But I digress, as it turns out the Angiogram that I had around Christmas 2002 did not heal. Turns out my right femoral artery was slowly bleeding and my right inner thigh was turning black over a period of a few days. If it wasn’t fixed immediately I would lose my right leg. My right leg had copped an awful lot that year.

I was placed in the hands of Dr Richard Slaughter and yes that really is his name. The hospital had just got its hands on a new full colour ultrasound machine that I was told was full of bells and whistles. Whatever that meant. It was decided to try something different. Rather than put me under the knife again and have vascular surgery on the artery it was decided to try a different procedure.

I would in a reclining position under local anaesthetic have a blood clotting fluid injected next to the opening in the artery. The syringe would be guided deep into my leg with this new ultrasound machine. As I sat there prone for all the students standing around to see we all had our fingers crossed that this would work. After the procedure we had to wait until the next morning for a scan to show that the bleeding had stopped. Thank goodness it worked and it was a hell of a way to bring in new year 2003.

2003 was to be the most eventful year of all as it was the year I received the transplant.

In January not long after going home from hospital I was staying at my friend Stewart’s house in Brisbane and started to get some chest pain. I took my letter of medical stuff explaining everything including medications to him as he was doing stuff in another room. I explained it was just in case as I was in a little pain. I went back out to watch some television. David Gilmour in concert was playing on the TV. I always thought Pink Floyd was supposed to be relaxing but it didn’t help this time. I calmly picked up the phone and called the ambulance. As they arrived Stew came out of his room with one of those WTF! Looks on his face. One of the ambos took a look at my letter and said “you’re special aren’t you”. She then asked if she could get a copy for a case study she was doing. It wasn’t the last time I would be asked this.

So off to hospital I went. Yep you guessed it Logan Hospital. This time I met a good young doctor. Lets call him Anton. Anton decided to take an interest in my case and spent quite a bit more time with me than what I have experienced in my many frequents trips to accident and emergency. Anton ordered all the usual tests including troponin levels which usually indicate heart attack or not. Turns out I was having a third heart attack this one minor. After going through my history he came back and we had a wonderfully frank conversation where he basically confirmed I was cactus and would need at least a heart transplant. This was something that his superiors could not figure out. I also found out later on in the year that the cardiac doctors were talking heart transplant as early as just after the initial heart attacks in Townsville.

Unfortunately the procrastination and refusal at Logan Hospital to make a decision and contact the heart failure unit at Prince Charles Hospital in Brisbane could have been fatal. Every medical professional I spoke to at the time was mystified at the lack of decision making. Thank goodness there are good doctors out there that actually care. Young Anton was one of them.

Thankfully I was transported to Prince Charles Hospital and after a heap of tests almost all involving some form of being cut open plus the usual bucket of blood it was decided to put me on the heart transplant waiting list as my pulmonary blood pressures had reduced enough for me not to need a set of lungs as well.

So I eventually went home and spent the next few months fading away with many visits to hospital to get things back in balance while my body was slowly dying. A number of the drugs were knocking me around terribly and I managed to somehow get every side effect imaginable. The ones I hated the most were the ones that sent my blood pressure through the floor. Wanting to faint 5 minutes after you take a drug is no fun. It’s even less fun when you try to convince a young arrogant fool masquerading as a doctor to stop insisting you take it when there are other drugs that can be used as an alternative.

A few weeks before my heart transplant I was seriously fading. The hospital trips became more frequent to “tune me up” and it was obvious the end was getting closer. My skin was getting greyer and I was now looking at “organising my affairs”.

One Saturday morning after coming off the air I was feeling even worse than normal as I was carrying an awful lot of fluid. I rang the hospital from the radio station car park and was advised to take a higher dosage of Frusemide which is a commonly used diuretic or “fluid tablet” in cardiac medicine.  By Monday morning I was feeling odd. I was scheduled to go into Prince Charles hospital for a heart failure clinic appointment that morning anyway.

I drove down the Gateway motorway in Brisbane which is the main freeway in that city bypassing a lot of the urban sprawl to the west to connect with the Gold Coast.
I started to get very bright vision almost to the point of being snow-blind so I pulled over had some sprays of my nitrolingual spray to ease my angina pain which by this stage was a many times daily affair and took a few minutes to settle down. I was about to call an ambulance but thank goodness I settled down and got rolling again towards the hospital. A good thing too as I have no idea what would have happened to my car anyway.

I finally arrived at Prince Charles Hospital  and started to make my way through “breezes” the hospital’s cafĂ©. At the front door were a number of nurses I had come to know quite well. They were manning a stall checking peoples blood pressure for a heart health promotion. They took one look at me and told me to sit down. They immediately called for a wheelchair and were on the phone to the heart failure unit. It was decided to take me straight to clinic and they could assess me there. I was fading rapidly.

They asked me to stand up to check my weight but I couldn’t, I was stuck. There was little pain, just my legs refusing to do what my brain was telling them to do. The truth was I was dying right in front of their eyes.

My kidneys had decided to completely stop working and I was fading away by the minute. Rather than carry on with the clinic they tried to get blood out of me so I was wheeled to the vampires room. By this stage I was in real trouble. There was little pain just a worsening feeling of being ill. I was writhing in the chair at this stage as I had dried right out. My kidneys were in total failure and I just asked the blood collector to punch me in the jaw. Just hit me hard in the jaw and knock me out I said. It was the worst feeling I had ever felt. I can deal with agonising pain it comes with the territory but this was different. I was literally dying in front of them and they had to do something.

I was rushed upstairs to the ward and they managed to get an I.V. drip into me and pumped a heap of saline into me as fast as they could. Luckily this process got everything kick started again thank goodness and a couple of hours later after being rehydrated everything was working again. Wasn’t relishing the thought of dialysis on top of everything else I was going through.

Later that night my American cardiologist Deborah Meyers came in to see how I was doing. Now to say Deborah was a lovely sight for sore eyes was an understatement. She wasn’t hard to look at at all. I was half asleep when I felt gentle hands slowly rubbing over my stomach and chest. Needless to say I awoke with a smile on my face as she pinched the skin on the back of hand as well. Turned out this was a perfectly normal medical test to see how dry my skin still was. She was trying to see if I was fully hydrated back to normal. Ah well the silly dreams of the sick and infirmed.

Jokes aside this huge incident was an obvious example that the end was near as my organs started to find it harder and harder to do their jobs. I was dying at a more rapid rate and if a donor heart wasn’t fount soon it was all over.

There were other incidents and a couple of false alarms over the coming weeks and then one night in June the call came. I cannot put the date in this book due to anonymity laws here in Queensland, Australia and this is made worse by my on air public profile. 

Every one of my plans for a lift to the hospital fell through that night. It was uncanny so I jumped in the car and bolted to the Prince Charles Hospital observing the speed limit of course (wink). Adrenaline somehow allowed me to lift a heavy bag out of my car and almost run into accident and emergency only to find that everyone that I wanted to be there plus one I didn’t had turned up. A lot of words were spoken and tears were shed while I was being prepped for surgery. There was bright red blood everywhere as my wrists were tapped like kegs only somebody forgot to let the local anaesthetic work first. I was like the Texas Chainsaw Massacre only it was real blood and boy did it contrast on the perfectly white sheets.

At this point I asked everyone to leave the room so I could talk to my friend Stewart. I could see the look on his face was one of fear. Was this the last time we would talk. The probability was high. I gave him my will and told him a couple of things I wanted organised if I didn’t make it as well as delivery of a letter to my ex fiancĂ© the contents of which aren’t important now.

I told him that I loved him like the brother I never had, we hugged and called the nurses back in.

The moment had arrived…………………..



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